Repository of Research and Investigative Information

Repository of Research and Investigative Information

Ilam University of Medical Sciences

Design and development of a web-based registry for Coronavirus (COVID-19) disease

Tue Jun 25 03:18:24 2024

(2020) Design and development of a web-based registry for Coronavirus (COVID-19) disease. Medical Journal of the Islamic Republic of Iran. ISSN 10161430 (ISSN)

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Official URL: https://www.scopus.com/inward/record.uri?eid=2-s2....

Abstract

Background: The 2019 coronavirus (COVID-19) is a highly contagious disease associated with a high morbidity and mortality worldwide. The accumulation of data through a prospective clinical registry enables public health authorities to make informed decisions based on real evidence obtained from surveillance of COVID-19. This registry is also fundamental to providing robust infrastructure for future research surveys. The purpose of this study was to design a registry and its minimum data set (MDS), as a valid and reliable data source for reporting and benchmarking COVID-19. Methods: This cross sectional and descriptive study provides a template for the required MDS to be included in COVID-19 registry. This was done by an extensive literature review and 2 round Delphi survey to validate the content, which resulted in a web-based registry created by Visual Studio 2019 and a database designed by Structured Query Language (SQL). Results: The MDS of COVID-19 registry was categorized into the administrative part with 3 sections, including 30 data elements, and the clinical part with 4 sections, including 26 data elements. Furthermore, a web-based registry with modular and layered architecture was designed based on final data classes and elements. Conclusion: To the best of our knowledge, COVID-19 registry is the first designed instrument from information management perspectives in Iran and can become a homogenous and reliable infrastructure for collecting data on COVID-19. We hope this approach will facilitate epidemiological surveys and support policymakers to better plan for monitoring patients with COVID-19. © Iran University of Medical Sciences.

Item Type: Article
Creators:
CreatorsEmail
Kazemi-Arpanahi, H.UNSPECIFIED
Moulaei, K.UNSPECIFIED
Shanbehzadeh, M.UNSPECIFIED
Keywords: Coronavirus COVID-19 MDS Minimum data set Registry system
Divisions:
Journal or Publication Title: Medical Journal of the Islamic Republic of Iran
Journal Index: Scopus
Volume: 34
Number: 1
Identification Number: https://doi.org/10.34171/mjiri.34.68
ISSN: 10161430 (ISSN)
Depositing User: مهندس مهدی شریفی
URI: http://eprints.medilam.ac.ir/id/eprint/2867

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